Como os portais do paciente podem apoiar a educação do paciente e o autogerenciamento de condições crônicas?

Through patient portals, individuals with chronic conditions can access their health information, such as medical records, test results, and treatment plans. Interactive educational materials, including videos, articles, and infographics, can be provided to enhance patients' knowledge and understanding of their conditions. Additionally, patient portals can facilitate two-way communication between healthcare providers and patients, allowing them to ask questions, clarify doubts, and receive personalized guidance. Features like medication reminders, symptom trackers, and goal-setting tools can empower patients to actively participate in self-management, ensuring they adhere to treatment plans, monitor progress, and make informed decisions.

An example of effective portal and patient education is orthopedic / sports medicine. Often the patients are pediatric, patient education materials with videos / graphics helps the patient and families understand everything from PT strengthening exercises to surgical procedures and rehabilitation.

The premise behind patient portals (and patient engagement) is that IF we provide patients (or anyone) with enough health information, we can "empower" them to change their health behavior. There is a problems with this "belief". Cognitive psychologists and others across a variety of fields (including healthcare and education) have consistently demonstrated that "giving people more information alone "IS NOT ENOUGH" to change their behavior. Changing health-related behaviors, which are often life-long habits, and which are embedded in the social, physical, and cultural context in which people live their lives, require more than just information.

I think portals are great, but there is a lot of disparity in portal use. At one ethnic church teaching health promotion, only one lady had heard of the patient portal and I have about five. Most of the people had tech in hand even though they were primarily seniors. There is bias happening in not offering patient portals to everyone. That said, I think there is untapped use for the portal...we should be running algorithms and pushing health preventative screenings out. In the words of Spiderman.."With great power comes great responsibility"

Patient education is crucial for managing chronic conditions like diabetes or hypertension. - It enhances understanding of conditions, symptoms, and treatments, empowering informed decision-making and adherence to treatment plans. - Patient portals provide easy access to tailored information, including videos, brochures, and webinars. -They also facilitate communication with care teams, allowing questions, clarifications, and feedback.

1. I integrate features that allow patients to easily track vital signs and symptoms, like blood sugar or blood pressure, allowing them to monitor their condition. 2. I make sure the portal allows patients to view their medication lists, set reminders, and request prescription refills, facilitating adherence to treatment plans. 3. I add access to digital self-help programs, diet and exercise guides, and support groups, offering patients resources to manage lifestyle changes associated with chronic conditions. 4. I make sure the portal offers telehealth options, allowing patients to have virtual consultations and online coaching, ultimately improving their engagement and self-management capabilities.

Self-management features in chronic disease apps offer patient empowerment, and the opportunity to strengthen their self-efficacy and improve control over their health. By allowing patients to track symptoms, manage medications, and maintain their care plans, these tools also enable more effective communication with healthcare providers. With real-time data and progress tracking, patients can immediately recognize and respond to changes in their condition, reducing complications and improving outcomes. These apps support treatment adherence and promote positive emotions and self-efficacy, which are linked to better coping strategies and behaviours to maintain health, leading to greater satisfaction and well-being.

Included in the "ability" to self-manage one's condition is self-efficacy, e.g., the knowledge and self confidence that we have the "ability to manage our own condition.

Empowerment: Self-management empowers individuals to actively monitor, control, and cope with chronic conditions, fostering a sense of control over their health. Portal Support: Patient portals facilitate self-management by offering tools for tracking symptoms, accessing information, and engaging in telehealth, promoting informed decision-making and personalized care.

Patient portals allow individuals to access personalized information, track health data, and communicate efficiently with healthcare providers, enhancing the overall efficiency and effectiveness of their healthcare journey. These advancements not only promote adherence to treatment plans but also facilitate early detection of potential issues, enabling timely intervention and improved outcomes. Overall, the integration of self-management through patient portals harnesses the potential of AI-driven healthcare to empower patients, foster a proactive approach to disease management, and ultimately enhance the delivery of patient-centered care.

There has to be education on both the patient side and Provider side. Patients are often more tech savvy than we give them credit. The most recent example was during the pandemic and virtual visits. Just weeks before that, Providers and Organizations were convinced patients would not like or be able to figure out video visits and e-visits. Now, it's the preferred method for some. Having educational materials and knowledge pop-ups to show Providers what is capable and they will help progress your digital agenda at your Organization.

Improved Communication and Coordination: Patient portals enhance provider-patient communication and collaboration among care team members, improving the delivery of patient-centered and coordinated care for chronic conditions. Efficient Information Management: Providers can access and update patient information more efficiently, use data analytics for personalized care, and meet quality measures, leading to increased patient satisfaction, loyalty, and potential financial incentives.

By engaging patients through portals, providers can enhance patients' understanding of their condition, treatment options, and self-care strategies, ultimately promoting active participation in their own care and better health outcomes. Patient portals also facilitate seamless communication, enabling providers to deliver personalized and timely health information to patients, enhancing patient-provider collaboration, and promoting shared decision-making. Additionally, enabling patients to access their health information and educational resources anytime, anywhere through portals enhances convenience and supports individuals in managing their chronic conditions more effectively.

Patient portals can play a key role in deepening the therapeutic alliance between a clinician and a patient by allowing frictionless messaging, journaling and the completion of patient rated outcome measures. They should be well designed and easily accessible via mobile apps and the web since patients have different preferences when it comes to connecting with their clinicians. For psychiatric conditions, continuity of care and long-standing treatment relationships are key and a well thought out portal can help facilitate that ongoing relationship.

Patient portals streamline communication between patients and healthcare providers. Secure messaging and telehealth capabilities enable real-time consultations and remote monitoring. This enhances patient engagement and reduces the burden of in-person visits, leading to more efficient healthcare delivery. Providers can proactively address patient concerns, ensuring a higher quality of care.

Privacy concerns regarding patient data security can hinder portal adoption. Additionally, limited digital literacy among some patient demographics and disparities in access to technology must be addressed. Overcoming these challenges requires robust data encryption, user-friendly interfaces, and efforts to bridge the digital divide to ensure equitable access.

Perhaps the greatest "barrier " standing in the way of patient engagement is the simple reality that for the better part of the last 4 millennia going back to Hippocrates, physicians have never expected, taught, or allowed patients to take responsibility for their own healthcare . It is the rare patient that has the courage to challenge their traditional role-based beliefs as passive and compliant ... and just as rare for a physician that has the presence of mind to encourage and allow patients to become more engaged be it on a portal or face-to-face in the exam room.

I think, with recognizing and understanding these obstacles, healthcare providers can better tailor their approaches to ensure effective engagement and empowerment of patients. Some challenges may include limited digital literacy among certain patient populations, the need for personalized content that is easily digestible and actionable, concerns regarding data security and privacy, and the necessity for ongoing support and guidance throughout the self-management process.

In my experience, discussing strategies for increasing awareness and interest in patient portals among both patients and providers, such as targeted educational campaigns or training initiatives, could address the challenges related to adoption and functionality.

I definitely think there are disparities in technology, but I also think Health Organizations haven't fully appreciated the value of digital health. The cost of decreasing ED visits by providing patients with the ability to self monitor via a patient portal and intervene before it requires a visit to the ED is substantial. But, the idea of providing a device to a patient seems ridiculous. I am simplifying tremendously here, the process is more complex than this. If you can imagine though, the purchasing power of a huge health organization to have low cost devices, provide network data for patients to log into portals, and/or monitoring devices that integrate with your EHR, the savings in Healthcare would outshadow the cost.

These platforms have the potential to empower patients by providing access to comprehensive resources, personalized health information, and convenient communication channels. With effective strategies in place, healthcare providers can create tailored educational content, interactive tools, and remote monitoring capabilities to promote patient engagement and improve health outcomes.

To tackle these challenges, healthcare providers should offer comprehensive training and support to patients for navigating the portal effectively. Integrating AI-driven chatbots can provide instant assistance, making the portal more user-friendly. Furthermore, offering multilingual resources caters to diverse patient populations and ensures inclusivity.

What I've found helpful was exploring the role of patient feedback in refining user-friendly interfaces, ensuring that design improvements align with the actual needs and preferences of users engaged in chronic condition self-management.

I would like to see interoperability of portals so that regardless of who my providers are they can share information. When will this happen. I should not have 5 portals to check.....no doctor is going to do that....so really the portals are not helpful. I wrote an article about this in my Blog Nurse Advocate. https://nursesadvocates.com/how-many-patients-portals-do-you-have

For the current generation of patients the "horse has left the barn" when it comes to patient portals. Sure they have tremendous potential ... but you only get one chance to make a good first impression. I fear that too many of us were so unimpressed with our "first impressions" of patient portals (there is no there there) that it will be sometime before healthcare can convince them to "come back".

As technology continues to advance, patient portals equipped with AI capabilities have the potential to provide personalized and proactive support to individuals managing chronic conditions. By effectively leveraging AI algorithms and machine learning, patient portals can analyze vast amounts of patient data, identify patterns, and generate actionable insights, empowering patients to make informed decisions about their health and well-being. This enhanced level of patient education and self-management facilitated by AI-driven patient portals can lead to improved health outcomes, increased patient engagement, and more efficient healthcare delivery.

The future of patient portals lies in AI-driven personalization and predictive analytics. By leveraging AI algorithms, portals can offer tailored health recommendations based on an individual's health data. Predictive analytics can anticipate health issues, allowing for proactive interventions. Remote monitoring of vital signs and wearables integration will further enhance patient management, transforming chronic care into a proactive, data-driven model, ultimately improving patient outcomes.