NF Research
NF refers to genetic conditions that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.
1
FDA-approved Drug for NF, and more on the horizon
Koselugo (selumetinib) is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more approved drugs for all types of NF!
3X
the number of NF Clinical Trials in the past 10 years
There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!
45
years of funding NF research
The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.
11,000
have joined the NF Registry
The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!
20,000
patients each year visit the NF Clinic Network
The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.
Search our database for an NF specialist near you
Learn more about NF1, and all types of SWN, including NF2-SWN
Tell us more about your NF journey
Signup or donate to a CTF fundraising event
Search for a participant or fundraising team
Your gifts make a difference
Learn more about the largest annual gathering of NF experts
View upcoming RFAs and search CTF-funded projects
Read about our Pharma and Biotech partnerships
Search our website for news and information about NF.
Latest News
Global Landmarks Illuminate for World NF Awareness Day as Children’s Tumor Foundation Highlights its Make NF Research Visible Campaign
CTF Rings The Opening Bell® at the New York Stock Exchange
Global Landmarks Illuminate for World NF Awareness Day as Children’s Tumor Foundation Highlights its Make NF Research Visible Campaign
Using the NF Registry in Research: Video
CTF Rings The Opening Bell® at the New York Stock Exchange
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